Comments on: The Ugly Truth of CI - Open Captions (Thanks to Seek Geo)

By: DeafKitty

DeafKitty — Wed, 26 Mar 2008 15:54:29 +0000

CI/deaf people have right to remove CI but CI insurance won’t cover to remove CI from brain. CI laws should change the insurance will cover CI patients have right to remove. Aren’t they??? I don’t want to see CI/deaf people are suffered..That’s enough..

Keep fighting to CI insurance to change new laws that CI/deaf people have right to remove without cost. Keep fight.

ILY
DeafKitty

By: Robyn

Robyn — Tue, 26 Feb 2008 22:44:21 +0000

Very good vlog. Thank you for putting subtitles. I didn’t have time to go any further than Matthew Fowler. I’m sorry he was put through the cochlear implant operation. His parents should have listened and the doctors should have as well.

A Cochlear Implant will never work on someone that really does not want one, and rarely works on an older child.

In New Zealand he would never have been considered as a candidate. We have very tough guidelines here, and generally a Cochlear Implant are for those who have had hearing, and lost it.

My heart goes out to Matthew.

I am having a 2nd cochlear implant in a few weeks. I had my first one 15 years ago and like Matthew had that big scar. However, it isn’t major surgery, but jsut another type of ear operation. These days the incision/scar is much much smaller as techniques have got better.

Because I have been hearing most of my life, I am looking forward to hearing again. However, if it doesn’t work, I will be totally deaf for the rest of my life. But I would rather try and fail, than not try at all. Better to know for sure, than to keep wondering.

Cheers
Robyn

By: mtnguy

mtnguy — Tue, 12 Feb 2008 00:36:11 +0000

What I believe Doctor actually greedy for making money and put deaf people are suffer.

By: Kim

Kim — Sun, 27 Jan 2008 01:33:52 +0000

You are right 100 percent also can you tell Dr. in Canada for this true stories. Thank you wonderful your adversture in internet website

By: LaRonda

LaRonda — Sat, 26 Jan 2008 03:57:23 +0000

Powerful story. Important to share with all. Glad you captioned it so others who don’t sign can follow.

~ LaRonda

By: Ann_C

Ann_C — Sat, 26 Jan 2008 03:04:03 +0000

Please thank Geo for me, I understand your vlog better with Geo’s captioning help! Thanks for presenting another side to CI’s. Wish Mathew’s parents had listened to their son and valued what he believed over what the doctors, audiologists, etc. told them. Age fourteen or teen age is old enough to know what communication mode the son preferred and the parents should have paid attention. CI’s don’t always work for an older child!

By: Deaf Pixie

Deaf Pixie — Sat, 26 Jan 2008 01:28:03 +0000

Geo is always our super vlogs. Hope the Lesgisture Law will need to research about CI, seriously!

By: Bill

Bill — Sat, 26 Jan 2008 00:30:53 +0000

Amazing. Thanks Matt, for sharing your story. I had no idea that they needed to cut that much into the skull - that’s as risky as brain surgery.
I would like to know if Matt’s hearing aids helped at all.

And thanks for captioning Jack - people need to know about this before they experience the difficult decisions in raising a deaf child.

As I see it now, it would seem best to try to have a child learn speech, with the help of non-surgical hearing technology, without it having to be a main focus of their education or communication, and no substitute for acquiring ASL, a more natural acquisition for a deaf child.

By: The Ugly Truth of CI - From Jack's Eyes Video

The Ugly Truth of CI - From Jack's Eyes Video — Sat, 26 Jan 2008 00:23:30 +0000

[...] believe they cut into the skull for this - it’s as risky as brain surgery! This video came from http://jackeyes.wordpress.com/2008/01/25/the-ugly-truth-of-ci-... No Comment Watched It LOL’d Loved It Hated It Tell ‘em 0 0 ratings rate [...]

By: deafk

deafk — Fri, 25 Jan 2008 23:47:10 +0000

I meant that this Matthew signed very clear and well.

Thanks, deafk